Blessings in 2011

Well, in keeping with practicing my writing by blogging; I thought I would use our blog to write my first ever yearly update letter.


In January we were blessed by several pieces of accessibility equipment which were desperately needed by Gabriel.  First, we had ADA compliant ramps installed at the front and back doors.  Second, we traded in the Sedona Minivan for a Mazda 5 wagon.  In the Mazda 5, we put a full support car seat that can potential serve Gabriel until he weighs 120 pounds.  Third, we procured an accessibility van.  We can now safely transport Gabriel in his wheelchair or stroller.

Finally, three lift systems were installed in the house.  A fully portable system currently stands in the great room.  A semi-permanent track runs from the door of Gabriel's room to the window of the other side.  Finally, a permanent track runs from the door of the master bathroom into the shower.  The lift will allow family, friends, and caregivers to lift Gabriel and maneuver him as we meet his basic needs.

In March, Glen began Partners in Policymaking.  This program, which required Glen to travel to Raleigh, North Carolina one weekend out of each month, instructs parents of individuals with disabilities, self-advocates, and career advocates in skills necessary to effectively advocate for individuals with disabilities at the local, state, and federal levels.  Glen will complete the program in September.

In April, we traveled to Washington DC for the second stateside Aicardi-Goutieres Syndrome conference.  We learned that an international consortium has formed to continue research into the causes, pathology, and treatments for individuals with AGS.

In July, Emily marked her fifth anniversary working for Muzak, Inc.  Which recently emerged from Chapter 11 protection after being acquired by Mood, Inc.  Emily is now the most senior member of the Purchasing Department.  She continues to enjoy the challenges that the job brings.

In late July, we traveled to the foothills of North Carolina for our fourth Joni and Friends Family Retreat.  These retreats provide respite and care for individuals with disabilities and their families. We all had a great time, and Gabriel was the most responsive to his caregivers.  We even went up in a hot air balloon.

In August, a prayer was answered about which we have blogged before.  God brought to Calvary Church and our lives the Heloties.  Mark, Lucette, Daniel, AJ, and Lydia have quickly become dear friends.  AJ and Gabriel have developed a friendship about which authors write books.  AJ loves talking to Gabriel, and Gabriel shines with a large grin each time he hears AJ's voice.

October brought one of the greatest blessings given to us by others.  In Charlotte we have two radio personalities, Ace & TJ.  Years ago they started a non-profit, Grin Kids.  Each year they take around 21 children with disabilities, their entire immediate family, and one caregiver for the family to Walt Disney World Parks and Resorts.  This past October we traveled to Orlando with Emily's best friend Andrea all expense paid.  We enjoyed three full days in the parks.  With the exception of quite a bit of rain, we all had a great time!

After 26 months of extremely late nights, in December Abilene Christian University conferred on Glen the degree of Master of Education in Curriculum and Instruction.  With Gabriel as his inspiration and Emily as his encouragement, he completed the degree with a 4.0 average.  He is currently applying to have the degree added to his certifications for both North Carolina and South Carolina.  He is looking forward to the opportunities that his work in Partners for Policymaking and new degree with afford.

The year ends with Gabriel in a great place!  He is making great strides medically and developmentally.  With the exception of a seizure in November, we continue to enjoy a span of good health which has really lasted 18 months.  Gabriel continues to do well in school, and has started experiencing simple readers online.  We also experienced Gabriel first independent steps in his gait trainer in which he was able to propel himself 20 feet over a forty-five minute period.

So, God has richly blessed us this year.  We praise Him for the family and friends who are taking this journey with us.  We praise Him for a wonderful son who brings us great joy every day.

We wish everyone a Merry Christmas and may you be richly blessed in the New Year!